I woke up after a night of restless sleep. I have been struggling with a bad flare up of my chronic facial pain disorder. I haven’t slept much in over a week and haven’t consumed much other than water in four days. I try to eat something everyday and can’t. The pain is just too much. Even soft things are hard to chew.
People think I’m losing weight because I want to. That’s not the case at all. I don’t want to, I just can’t eat. I’m kind of sick looking. My face is swelled slightly and my eyes are pink looking and puffed underneath because of the pain and lack of sleep. My skin is pale looking.
I’m exhausted and fatigued. Today I decided to walk to a store and buy mashed potatoes with beef flavored gravy! Yum, right?! I came home, put it on the kitchen table and my dog had to go in the backyard and doesn’t like the yard door being closed with no one out there with her. So I went out with her and came back in and guess what?! My cats ate my potatoes! And they were kind of on the expensive side for someone like me with very little money! Can you say, disappointed?! Lol oh well there goes that.
So what kind of day is today?
I woke up fatigued, restless, hungry, in pain, exhausted, and achy and I feel nothing but…..pure joy! That’s right, sheer joy!
I’m generally very happy but the joy I feel all day today isn’t a regular, general happy.
You know that joy you experience when you hit the lottery, buy a new car, meet a new friend, a new romantic love interest, get a job offer…it’s kind of like that! But none of that happened to me today or recently!
I can often tap into that kind of joy when I try but today it’s just here unexpectedly but definitely welcome! 😀
I had a flashback memory today of when I was a little girl and my mom and dad would take me to Center City Philadelphia at night and we would buy hot chocolate chip cookies and lay out on the grass under the black or navy starlit sky and eat them. There were so many fireflies lighting up green and all people would just lay out and look at the stars and stuff and one night a man said to the fireflies “Hey turn out the lights!” lol it was so funny and we all just laughed.
There’s a kind of childlike joy that we often don’t feel as adults. Things that were so amazing and thrilling back then just often don’t have that feel anymore. We may still love them but they don’t as frequently provoke that deep joy. I love when I can tap into that now. And I believe we all can more often with mindfulness.
Music sounds so great, the air is sweet and caressed by a sweet floral fragrance. Outside is bursting with green, flowers, sunshine. There’s a sweet breeze in the air.And my long hair got stuck in a tree walking to work today! Lol 😀 It’s always fun when that happens! ;-p
It’s a beautiful Spring day. Except today is the first day of Summer here in Philadelphia! My least favorite season!
But it feels more like Spring.
I love the wonder all around.
This just goes to show that someone CAN be happy even when things aren’t perfect or there’s problems and lots of pain.
And when I say pain, I’m talking about bone deep pain, soul shattering pain, like it’s gripping my very essence. But you know what else is gripping my very essence? Love. Deep love. Not just the the love directed at certain people and objects, and things but just deep all encompassing Love.
My pain disorder can leave me feeling and being so broken. I’m not referring to depression. But the broken-ness that comes along with having a chronic physical illness or pain disorder. I’m broken but I’m so beautifully whole. There’s a kind of irony to that but it’s beautiful.
“Find a place inside where there’s joy, and the joywill burn out the pain.” – Joseph Campbell
It doesn’t completely burn out the pain but it does lessen the power of it, it breaks the bondage.
“Today I choose life. Every morning when I wake up I can choose joy, happiness, negativity, pain… To feel the freedom that comes from being able to continue to make mistakes and choices – today I choose to feel life, not to deny my humanity but embrace it.” ~ Kevyn Aucoin
I hope you are well wherever you are and experiencing bone deep joy and love.